Im sure I have said this before but we are slowly but surely getting settled in and making new memories in our new home.
Liam has decided the dog bed is a great place to relax. I think he probably lays in it more often than Milo does.
Im sure I have said this before but we are slowly but surely getting settled in and making new memories in our new home.
Liam has decided the dog bed is a great place to relax. I think he probably lays in it more often than Milo does.
Oh man what a year it has been since we were given the great news that this little guy is in remission. The rollercoaster of the entire situation is hard to explain but overall we just feel grateful. Currently we have been doing scans every 3 months and now that things continue to look good we will move to every 4 months. That is a double edged sword. I hate that we have to do scans at all but it totally freaks me out that we are spacing them out more than before. We will continue rotating between CT scans and US/Xray to keep his radiation exposure down. There were several changes this go around with all the changes put in place the beginning of the year. Primary Children's got rid of their nurse practioners that did their sedation in an effort to save the hospital money and so they brought in an outside 3 party anestisia group to take over that. It was not a decision that was made in the best interest of the patients and so maddening as a mom. Liam had to be tested for covid a couple days in advance and of coarse came back negative. I asked to talk to a supervisor when I got there to see what the changes would mean for Liam. The nurses felt as though their hands were tied....they weren't thrilled with thte changes either. They decided they would try some versed and see if it would work but they gave it before they put his iv in. The IV team came in to put his IV in and missed twice at that point I felt like I was going to lose it. Liam was so upset and we had basically gotten nothing done. I asked for a new member of the iv team and they sent someone more experienced this time. She got it in the first time but by this point Liam's versed had worn off and it was a lost cause. They ended up having to give him more meds to get his CT scan done. It was terrible to see him terrified like that. He was so young when he was diagnosed and I don't think he remembers most of it but he is getting to the point that he knows he doesn't like the hospital. No child should have to go thru this. But on the flip side Im so grateful that the results continue to be good. Liam loves that he gets a rootbeer slushee and goldfish when he wakes up and the cuddles after are always the best.
We were able to get together for lunch while everyone was in town. We went to Roosters and our food was delicious. I often feel a disconnect with Matt's family. I just don't get the opportunity to talk or connect with them often like I do with my family. I find sometimes when we get together that I am unusually quiet because I 'm not sure where I fit in or what type of conversation to start when I really have no idea what is going on in their lives and they the same with mine. But it was nice to visit for a bit.
Disney on ice has been such a fun thing to do with the kids. All of the kids are still in the stage of enjoying it. Matt was out of town so it was just the kids and I this time. The kids decided they wanted to have Applebees for dinner and they all ate very well.
They were all excited to get dressed up with their glow wands
I can't explain how much joy it gives me to see my kids with their cousins. I grew up close with my cousins. I felt like we got together pretty regularly for birthdays and holidays. I have so many great memories of that. My kids also ask regularly and get so excited to spend time with their cousins. 
The kids have been having a great time with the little bit of snow that we have gotten. It has been really sad we need more snow to help keep our water supply stable.